{"ok":true,"n":108,"firstAt":"2026-09-09T00:00:00","lastAt":"2026-10-14T00:00:00","channels":{"advocate":4,"paid-panel":103,"direct":1},"headline":{"n":106,"of":"answers about the person's own illness","method":"The ranking, the three questions, the clinician count and the ranking by sex are computed from answers about the person's own illness. Answers a parent or caregiver gave about a child are read only as their own group, by stratum, and that group is withheld until it holds 11 answers."},"ranking":[{"burden":"forgone","rankedFirstBy":43,"rankedLastBy":12,"meanRank":2.33},{"burden":"oop","rankedFirstBy":36,"rankedLastBy":10,"meanRank":2.41},{"burden":"time","rankedFirstBy":23,"rankedLastBy":3,"meanRank":2.45},{"burden":"work","rankedFirstBy":4,"rankedLastBy":28,"meanRank":3.56},{"burden":"unpaid","rankedFirstBy":0,"rankedLastBy":53,"meanRank":4.25}],"rankingBySex":{"min":11,"stated":105,"notStated":1,"groups":[{"sex":"Female","n":66,"ranking":[{"burden":"forgone","rankedFirstBy":26,"rankedLastBy":6,"meanRank":2.29},{"burden":"time","rankedFirstBy":14,"rankedLastBy":1,"meanRank":2.41},{"burden":"oop","rankedFirstBy":22,"rankedLastBy":7,"meanRank":2.44},{"burden":"work","rankedFirstBy":4,"rankedLastBy":19,"meanRank":3.61},{"burden":"unpaid","rankedFirstBy":0,"rankedLastBy":33,"meanRank":4.26}]},{"sex":"Male","n":37,"ranking":[{"burden":"oop","rankedFirstBy":13,"rankedLastBy":3,"meanRank":2.35},{"burden":"forgone","rankedFirstBy":15,"rankedLastBy":6,"meanRank":2.43},{"burden":"time","rankedFirstBy":9,"rankedLastBy":2,"meanRank":2.49},{"burden":"work","rankedFirstBy":0,"rankedLastBy":8,"meanRank":3.46},{"burden":"unpaid","rankedFirstBy":0,"rankedLastBy":18,"meanRank":4.27}]}],"withheldGroups":1,"withheldResponses":2,"why":"The Federal Sprint Lead for the Invisible Illness track asked every team, on 26 August 2026, to be intentional about sex differences where relevant.","method":"Each group is the same count of the same answers as the total above it, computed by the same function. A sex group holding fewer than 11 responses is withheld here rather than served and hidden later, because a cross-tabulation narrows the group twice. Nothing is weighted, imputed or extrapolated."},"rankingByStratum":{"min":11,"counts":{"pediatric-onset":27,"adult-onset":67,"onset-not-stated":12},"groups":[{"stratum":"pediatric-onset","label":"Began before 18, answered by the person","n":27,"ranking":[{"burden":"forgone","rankedFirstBy":14,"rankedLastBy":1,"meanRank":2},{"burden":"time","rankedFirstBy":6,"rankedLastBy":0,"meanRank":2.41},{"burden":"oop","rankedFirstBy":6,"rankedLastBy":5,"meanRank":2.78},{"burden":"work","rankedFirstBy":1,"rankedLastBy":6,"meanRank":3.63},{"burden":"unpaid","rankedFirstBy":0,"rankedLastBy":15,"meanRank":4.19}]},{"stratum":"adult-onset","label":"Began at 18 or older","n":67,"ranking":[{"burden":"oop","rankedFirstBy":26,"rankedLastBy":4,"meanRank":2.27},{"burden":"time","rankedFirstBy":17,"rankedLastBy":3,"meanRank":2.34},{"burden":"forgone","rankedFirstBy":21,"rankedLastBy":11,"meanRank":2.61},{"burden":"work","rankedFirstBy":3,"rankedLastBy":16,"meanRank":3.48},{"burden":"unpaid","rankedFirstBy":0,"rankedLastBy":33,"meanRank":4.3}]},{"stratum":"onset-not-stated","label":"Age at onset not stated","n":12,"ranking":[{"burden":"forgone","rankedFirstBy":8,"rankedLastBy":0,"meanRank":1.5},{"burden":"oop","rankedFirstBy":4,"rankedLastBy":1,"meanRank":2.33},{"burden":"time","rankedFirstBy":0,"rankedLastBy":0,"meanRank":3.17},{"burden":"work","rankedFirstBy":0,"rankedLastBy":6,"meanRank":3.83},{"burden":"unpaid","rankedFirstBy":0,"rankedLastBy":5,"meanRank":4.17}]}],"withheldGroups":1,"withheldResponses":2,"method":"Each stratum is the same count of the same answers as the total, computed by the same function. A stratum holding fewer than 11 responses is withheld here rather than served, its count as well as its ranking. Rows collected before the instrument asked (version 2026-10-01.1) are \"age at onset not stated\", never assumed adult."},"unasked":{"forgone":32,"unpaid":15,"all-asked":19,"work":18,"time":13,"oop":9},"lead":{"forgone":34,"work":8,"oop":39,"time":23,"unpaid":2},"decide":{"patients":48,"reader":35,"clinicians":15,"researchers":8},"clinicians":{"n":105,"median":3,"mean":5,"max":47},"coverage":{"age":{"not stated":71,"45–64":17,"fewer than 11, not shown":20},"sex":{"Male":37,"Female":68,"not stated":1,"fewer than 11, not shown":2},"insurance":{"not stated":71,"Employer plan":15,"fewer than 11, not shown":22},"region":{"not stated":71,"South":18,"fewer than 11, not shown":19},"state":{"not stated":71,"fewer than 11, not shown":37},"stage":{"not stated":71,"Diagnosed":28,"fewer than 11, not shown":9},"respondent":{"not stated":5,"Me, about my own illness":101,"fewer than 11, not shown":2},"onset_age":{"not stated":12,"18–29":27,"45–64":15,"30–44":24,"13–17":16,"5–12":11,"fewer than 11, not shown":3},"diagnosis_age":{"not stated":10,"18–29":35,"30–44":27,"45–64":20,"fewer than 11, not shown":16}},"coverageWithheld":{"age":{"cells":3,"responses":20,"min":11},"sex":{"cells":1,"responses":2,"min":11},"insurance":{"cells":4,"responses":22,"min":11},"region":{"cells":3,"responses":19,"min":11},"state":{"cells":23,"responses":37,"min":11},"stage":{"cells":2,"responses":9,"min":11},"respondent":{"cells":1,"responses":2,"min":11},"onset_age":{"cells":2,"responses":3,"min":11},"diagnosis_age":{"cells":4,"responses":16,"min":11}},"smallCellMin":11,"sentencesHeld":20,"method":"Every figure is a count of responses exactly as entered. No weighting scheme of ours, no imputation, no extrapolation to a population. This is a self-selected sample, recruited through the channels listed, and must be read as one. Any answer to a question about the person (age, sex, coverage, region, state, stage, who is answering, the ages at onset and diagnosis) held by fewer than 11 responses is not shown: it is counted in the line \"fewer than 11, not shown\" and never named. Dates are published as the day, never the time.","firstOn":"2026-09-09","lastOn":"2026-10-14","teamTests":5,"fold":{"hit":true,"rows":113,"foldedAt":"2026-10-14T00:00:00"},"senders":108,"answers":108,"submissions":108,"senderBasis":"sends","denominator":"Some rows were our own team testing the form. They are left out of this count, and teamTests says how many. The sender index counts networks and cannot leave ours out, so while any row is marked this number counts what was sent, not senders.","deprecated":{"n":"answers"}}