Waypoint Ledger
Price my journey

Two minutes · six questions, then four optional ones about who you are

Which cost of looking for a diagnosis weighed most?

Rank the five burdens. Nothing here identifies you.

1Thinking about the whole time you were looking for a diagnosis, rank these from heaviest to lightest.

Tap them in order. First tap is the heaviest. Tap again to undo.

    Heaviest first:

    2Which one of the five did no one ever ask you about?
    3If a tool could show you one number about that time, which of the five should it lead with?
    4Who should decide how these are weighed when a total is reported?
    5How many different clinicians did you see before a diagnosis, or so far?
    6Sex optional

    Asked because the federal prevalence files we cite are published by sex, and because NIH expects sex to be accounted for as a biological variable in the research it funds — NIH NOT-OD-15-102, Consideration of Sex as a Biological Variable in NIH-funded Research, 9 June 2015. It is published only as a count. Where a federal file is silent on sex, /method says so.

    Published on the register only where at least 11 people have given the same answer, under the same rule as the state. Below that it is withheld and the withholding is counted in public.

    Optional: who you are, so the sample can say who it covers

    Used only to publish who answered and who did not. Leave any of these blank.

    Your state is published on the register only where at least 11 people have named the same one. Below that it is withheld, and the withholding is counted in public, so a small count can never point at a person.

    Rank all five (0 of 5 so far).

    Why we ask

    Federal cost studies decide how to weigh money, time and lost work by analyst judgment. We are asking the people who carried it. Everything you answer is published only as a count, alongside how many people answered and where they came from.

    Read what is recorded. See the register for what everyone has said so far.

    Instrument version 2026-09-09.3. Burden ids: oop, time, work, unpaid, forgone.